Sticky post
My ‘Crohn’s, Colitis & Me’ story
The 1st to 7th December is Crohn’s and Colitis awareness week. A week dedicated to making these invisible illnesses more VISIBLE! One of Crohn’s and Colitis UK initiatives for the week is to help people with Crohn’s Disease and Ulcerative Colitis share their own story by creating a personalised awareness poster and posting it on social media. Nearly 3,000 people have already made their own poster including … Continue reading My ‘Crohn’s, Colitis & Me’ story
Bristol to Bath 2015 – One marathon too far
Date of adventure: 25th October 2015 Adventures for me are not about seeing how much torture I can put myself through to reach a certain goal. They are meant to be fun – challenging yes – but ultimately they are not meant to be something I drag myself through kicking and screaming. However that’s how it felt lining up at the start of the Bristol … Continue reading Bristol to Bath 2015 – One marathon too far
Race to the Stones – My fears, worries and determination
Since April I’ve kept thinking of writing a post about my worries for Race to the Stones, but whenever I started it write it it would just be too negative to share but now I’m only 7 days away I thought I’d compile all those little thoughts into a blog about my training and mental journey since the London Marathon. April Although it was only … Continue reading Race to the Stones – My fears, worries and determination
The Transition to Adult Care – EPF Roundtable discussion
On March 21st as part my volunteering as a board member of the EFCCA Youth Group I attended a Roundtable discussion on Transition to Adult Care in Brussels, hosted by the European Patient’s Forum’s (EPF) Youth Group. The aim of the workshop was to gather young patient organisations and relevant stakeholders to help: Identify both bad and good practices in national healthcare systems Build a thematic … Continue reading The Transition to Adult Care – EPF Roundtable discussion
Hitting the wall of fatigue, and it’s my fault!
Whenever I hit the wall, be that running, cycling or climbing mountains, I tell myself not to blame the Crohn’s Disease. In fact I tell myself to find anything BUT the Crohn’s Disease to blame for my lack of energy as that’s more of a positive attitude to take and is something I can improve upon, and most of the time it works. Without this … Continue reading Hitting the wall of fatigue, and it’s my fault!
EPF Youth Group Meeting 2015
Part of my volunteering as a board member of the EFCCA Youth Group took me to Bucharest, Romania last September to take part in the European Patient’s Forum’s (EPF) 5th Annual Youth Group meeting. The EPF is an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe, of which EFCCA is a member of. This was my first year at … Continue reading EPF Youth Group Meeting 2015
Day 7 of #7DaysofIBD for Crohn’s and Colitis Awareness Week
#7DaysofIBD is to show how every day with Crohn’s Disease and Ulcerative Colitis is different by asking people to share their story during the Crohn’s and Colitis Awareness Week using #7DaysofIBD and here’s a day from mine… ________________________________________________________ Day 7 of #7DaysofIBD Writing my #7daysofIBD (which actually turned into 14) has be rather therapeutic by forcing me to write down my thoughts from each day looking … Continue reading Day 7 of #7DaysofIBD for Crohn’s and Colitis Awareness Week
Day 6 of #7DaysofIBD for Crohn’s and Colitis Awareness Week
#7DaysofIBD is to show how every day with Crohn’s Disease and Ulcerative Colitis is different by asking people to share their story during the Crohn’s and Colitis Awareness Week using #7DaysofIBD and here’s a day from mine… ________________________________________________________ Day 6 of #7DaysofIBD When I get asked ‘how am I doing with my Crohn’s?’ My response is that fatigue has been the main symptom over recent months … Continue reading Day 6 of #7DaysofIBD for Crohn’s and Colitis Awareness Week
Day 5 of #7DaysofIBD for Crohn’s and Colitis Awareness Week
#7DaysofIBD is to show how every day with Crohn’s Disease and Ulcerative Colitis is different by asking people to share their story during the Crohn’s and Colitis Awareness Week using #7DaysofIBD and here’s a day from mine… ________________________________________________________ Day 5 of #7DaysofIBD Autumn for me is always a busy time of volunteering, especially in November where every year since I started volunteering for Crohn’s and Colitis … Continue reading Day 5 of #7DaysofIBD for Crohn’s and Colitis Awareness Week
Day 4 of #7DaysofIBD for Crohn’s and Colitis Awareness Week
#7DaysofIBD is to show how every day with Crohn’s Disease and Ulcerative Colitis is different by asking people to share their story during the Crohn’s and Colitis Awareness Week using #7DaysofIBD and here’s a day from mine… ________________________________________________________ Day 4 of #7DaysofIBD Last week at work I sent an email out to the team that I work in talking about #PurpleFriday and how it would be … Continue reading Day 4 of #7DaysofIBD for Crohn’s and Colitis Awareness Week
The Chronic Adventurer 